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| Personal details | |
|---|---|
| Name | Maame |
| Age | 11 years |
| Place of birth | Takoradi |
| Residence | Takoradi |
| Country | Ghana |
Social circumstances:
Maame lives in a poor family of day labourers in the Ghanaian port and industrial city of Takoradi on the Gulf of Guinea.
Maame suffers from neurofibromatosis, which has severely disfigured her body, particularly her face. As a result, she no longer attends school, as she cannot bear the taunts of her classmates. She lives in isolation at home with no access to education.
Medical details:
This rare, genetically caused condition presents in various forms. It is therefore often diagnosed late. Its symptoms include, amongst other things, benign tumours in the skin and nervous system. Characteristic features also include skin pigmentation disorders, benign tumours in the nervous system and bone abnormalities. However, further symptoms may arise, which can in principle affect any organ system. Many sufferers also experience accompanying symptoms such as sleep disturbances, difficulty concentrating, diffuse pain or itching.
Common comorbidities include anxiety disorders and depression, not least due to the physical disfigurements.
Tulisa would like to pay for Maame to undergo plastic surgery specifically designed to improve or preserve the function of her eyes and nose.