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Care parcel has arrived in Santo Domingo!
Prof. Peter Stoeter – former Head of Neuroradiology at Mainz University Hospital – who is now working as a volunteer doctor in Santo Domingo, Dominican Republic, asked Tulisa for your support:
The “La Fundación Dr. Juan M. Taveras R.” foundation in the Dominican Republic cares for a group of currently 47 patients suffering from a hereditary metabolic disorder (Pantothenate Kinase-Associated Neurodegeneration, “PKAN”). The condition begins at school age and manifests as severe spasms (dystonia) of the limbs and trunk. In our patients, the muscles of the throat and tongue are also affected, meaning they can no longer swallow food, aspirate food and, in some cases, waste away to the point of being little more than skin and bones. Many patients die before the age of 30.
With the help of the Fundación Dr Juan Ml. Taveras Rodriguez, based at the CEDIMAT Hospital in Santo Domingo, Peter Stoeter, working alongside a team of doctors and other volunteers, looks after these patients and provides them with, amongst other things, medication, food and feeding tubes. A care package programme has now been launched for 10 patients in a particularly critical nutritional state (BMI < 15) to help their families with high-calorie food. The aid consists of one package per month per patient, worth approximately 40 euros. The foundation’s limited financial resources do not allow for more. Furthermore, the programme is intended only as a supplement to, rather than a complete replacement for, their diet, as it is essential to avoid the families becoming entirely dependent on aid.
Thanks to your donation, this programme can now be funded for up to half a year.
And so Peter Stoeter writes gratefully:
Dear Friends,
Here is the report on the Christmas party we held last weekend with our patients. They thoroughly enjoyed the event and the donations.
Many thanks to you all!
Peter Stoeter
That’s what Tulisa calls a Christmas present – many thanks to all the donors!